Today’s Prompt: Today we’re going to share our most memorable diabetes day. You can take this anywhere…. your or your loved one’s diagnosis, a bad low, a bad high, a big success, any day that you’d like to share. (Thanks to Jasmine of Silver-Lined for this topic suggestion.)
My most memorable day in 17+ years in living with Type 1 Diabetes was actually just within the last couple of months. I have touched on this in previous posts, but it is important. I woke up Easter Sunday morning. Thank God that I woke up. I honestly thought I was dreaming. I was laying down, covered by a sheet, almost completely. The sheets were actually covering my eyes. I knew I was waking up though. I remember holding on to the sheets, but not moving them. I remember seeing a post on the wall. I had always been told that you can’t read words or see numbers when you are asleep or dreaming. Which, ok, whatever. But I could read everything on the poster. At that point I realized there was an armband around my wrist. I picked it up to my head so I could read it. Still not moving the sheets mind you. I saw my name and patient code of EMS. I happen to work at this hospital so I knew what it meant and I knew then that it was real. I still didn’t know why I was there though. I sat straight the hell up. I remember them calling my name and telling me to lay back down. “UM, no but thank you. What is going on?” I do remember neither my boyfriend or my mother was there, and I was just lost. I needed someone. They said they were both in the waiting room. “Thanks but get one of them back here, and by the way, how long have I been here?” “Oh only about ten minutes.” Seriously. That’s it. Ok. Well my boyfriend came back and told me what had happened. I was in shock, I really was. He said I was moving around in bed and pretty much hitting him. It woke him up. He definitely realized what was going on and why I was acting like I was. He grabbed my kit and tested my, took a couple of tries, but finally got it. He got readings of 40 mg/dl and thereabouts. He grabbed my glucose gel and tried to get me to take some but even though my eyes were open, no one was home. This didn’t work. He called my mom and she drove over. Keep in mind this is all in the wee hours of the morning. She got in my face and couldn’t get me to respond. That was it. He grabbed me, threw me over his shoulder, and brought me to the ER. We were literally minutes away and 911 would have taken forever and a day, plus he knew I would be pissed if I found out I was brought over in an ambulance for some reason.
At any rate, this day will not soon fade from my memory. And I am more grateful than words could ever express that he was home when I needed him. See, he works as an engineer offshore. So he is only home with me for half of our lives together. I don’t know what I would have done without him. I just know I would have been another case of the increasing cases of “Dead in Bed” that is coming up more and more. It’s just unthinkable how fortunate I am to have him. And I try to let him know that every chance I get. He has stuck with me for nearly 10 years now, and I can only pray that he keeps putting up with me and everything that is entailed of my complicated crap disease. I, also am greatfull to the ER doc and the nurses that finally were able to find a line to give me emergency medications via IV. “Did you know you have no veins?” No, really tell me more.
Today’s prompt: Recently various petitions have been circulating the Diabetes Online Community, so today let’s pretend to write our own. Tell us who you would write the petition to – a person, an organization, even an object (animate or inanimate) – get creative!! What are you trying to change and what have you experienced that makes you want this change? (Thanks to Briley of inDpendence for this topic suggestion.)
I have to admit, I’m either completely out of creativeness or a completely bring person. I’ll be honest. There isn’t too much I would change at the moment. Even though my life with T1D is now approaching it’s 17th year anniversary, for most of it I was in complete denial and didn’t care. I took my shots, usually, but I never and I honestly mean never checked my blood sugars. Quite frankly, contemplating on the past, I am damn lucky to even be alive. I had an awakening. I was happy, really, in the past. I stayed decently thin. I never had to exercise, or for that matter watch what I ate. Nothing, and stayed thin. Didn’t give a damn that I was probably doing irreversible damage to my body. But for a good 10+ years I lived like this. How could I not. Positive reinforcement was abundant, even though it was coming from people who had no earthly idea that I was suffering from what they now call diabulemia. I had learned to live with always having something to drink nearby. Learned to deal with always bring tired. Learned to live and deal with it all. My awakening came when I was so deeply into a severe metabolic acidosis or severe DKA. I knew it, I just didn’t want to admit it. I went to work, because I never called in sick, like ever. One Friday afternoon after getting off from work, I could not breathe. My mother noticed it. She said lets go to the ER. No really I was fine. I couldn’t even walk to the car. I finally surrendered. I knew I was dead over the weekend if I didn’t do something. I went to the ER, was admitted to ICU and several days later, I was able to go home again. I finally at the ago of 30 and after 10-15 years of denial and ignoring what I didn’t want to acknowledge, it was over. I grew up. I took responsibility for me. I went to the doctor regularly. I got my regular labs. I was a “good diabetic” for the first time since high school. All went well. Until about six weeks ago. Wake up in the ER from a severe nocturnal hypoglycemic episode. CRAP. Well that’s what happens I guess. After I delved into the vast DOC that is here now, non-existent when I was first diagnosed, I took the stories and inspiration of a lot of those out there that I have come to admire for being, well like me, I decided on a CGM and now, after nearly 20 years, I am in the best condition I have been in in a long, long, (one more time) LONG time. And I am happy for once.
So to get back to the task at hand; my response would have to be “I have not yet been living a responsible diabetic” lifestyle long enough to make an informed response. I guess I should have started with that.
Today’s Prompt: “Often our health care team only sees us for about 15 minutes several times a year, and they might not have a sense of what our lives are really like. Today, let’s pretend our medical team is reading our blogs. What do you wish they could see about your and/or your loved one’s daily life with diabetes? On the other hand, what do you hope they don’t see?”
I’ll be honest, there’s not too much, at this juncture in my life, that I wish my endo didn’t see. Today is the first day that I had numbers nearing 300 showing on my Dexcom and I hated it. Even though there wasn’t so much I could do to stop it at that point, I still felt I was failing today. I always climb early in the morning. It’s a certainty. I will start with a BG and then 1-2 hours later (not eaten breakfast or ingested anything at this point), my sugars will start rising at least 40 points, more if I don’t watch it. Wasn’t as mindful as I could have been this morning, so by the time I was ready to eat I was already close to 200. Take my bolus/correction, eat and up, up and away I went. I knew it was coming, it just didn’t make it any easier. I couldn’t stand it, so I took a small correction and right as rain, I started falling…a little too much. And down in the trenches I went. I’m still trying to hold back on constantly looking at my trend graph to see what’s going on. Usually I’m good, but sometimes, my OCD self just can’t stand to see the climb on the graph, so I overdo it. O well. I do try and that is what matters.
Time for me to start a “new” sensor. I have just completed 7 days on my very first Dexcom sensor ever and its still sticking strong and continues to be accurate. I’m not willing to take it off just yet. I am totally loving it so far and do not know what I did without it (and it’s only been 1 week).
Until tomorrow’s post, keep on doing what you do, because you are awesome. Diabetes won’t get the best of me!
I was like a child waiting for Christmas morning waiting for the FedEx girl to bring my package to my office. (I had to sign for it and didn’t want to take a whole day off work just wait for it, but for the record, I totally would have). Anyways, I couldn’t concentrate for anything. It was sad really, but I had been waiting for what seems like such a long time and the last few hours were definitely the longest. But it finally showed up after lunch and then the next longest wait…the wait for the time to clock out. It finally came and straight home I went. Ate dinner, took a shower and got ready to get my first sensor inserted and get the show on the road. I got out the shower, got everything ready and got it done. I guess I was building it up so much in my head, but it went by pretty easily and surprisingly painless. Now that I think about it, I don’t know why I was expecting it to be a problem. I guess its the whole under-promise and over-deliver thing. Whatever it was, it’s all good. My only regret is that my honey was off at work and won’t be home for more than a week from now. So he didn’t get to see the process, but I’m pretty sure that he will be a pro at the whole thing in no time. It is just one more thing he has to deal since it is now a part of me. I shouldn’t say deal with, but I can’t think of a better way to put it at the moment.
Now I’m in the middle of the two hour start up and now it’s becoming a long two hours so I turned to catch this up and hopefully pass by a little time. Dang it, I do type fast. Blame it on the day job. People tell me all the time that I type fast, even if I am on the phone, the person on the other end will tell me how fast they can hear me typing. I take the compliment and just don’t really realize it until I stop and listen to my fingers on the keys. But, I digress. I’m having attention issues this evening. 🙂 I am looking forward to being able to take a peek into my levels in between finger sticks. I can see it now: I am going to drain the battery the first day because I am going to constantly be checking the dexcom. But hopefully my OCD and Type A personality will get over the newness and the excitement and let the Dex just be another part of my life with diabetes. Only now, hopefully with a little more knowledge and insight on my glucose levels, more than the 5-8 snapshots I see throughout the day. Peace out peeps…Here’s to an awesome first overnight (ok first ever) trend graph. 🙂