Tag Archives: TYPE 1 DIABETES;

4th Annual Diabetes Blog Week – 5/15/13 – Day 3

Today’s Prompt:
Today weโ€™re going to share our most memorable diabetes day. You can take this anywhere…. your or your loved one’s diagnosis, a bad low, a bad high, a big success, any day that youโ€™d like to share. (Thanks to Jasmine of Silver-Lined for this topic suggestion.)

My most memorable day in 17+ years in living with Type 1 Diabetes was actually just within the last couple of months. I have touched on this in previous posts, but it is important. I woke up Easter Sunday morning. Thank God that I woke up. I honestly thought I was dreaming. I was laying down, covered by a sheet, almost completely. The sheets were actually covering my eyes. I knew I was waking up though. I remember holding on to the sheets, but not moving them. I remember seeing a post on the wall. I had always been told that you can’t read words or see numbers when you are asleep or dreaming. Which, ok, whatever. But I could read everything on the poster. At that point I realized there was an armband around my wrist. I picked it up to my head so I could read it. Still not moving the sheets mind you. I saw my name and patient code of EMS. I happen to work at this hospital so I knew what it meant and I knew then that it was real. I still didn’t know why I was there though. I sat straight the hell up. I remember them calling my name and telling me to lay back down. “UM, no but thank you. What is going on?” I do remember neither my boyfriend or my mother was there, and I was just lost. I needed someone. They said they were both in the waiting room. “Thanks but get one of them back here, and by the way, how long have I been here?” “Oh only about ten minutes.” Seriously. That’s it. Ok. Well my boyfriend came back and told me what had happened. I was in shock, I really was. He said I was moving around in bed and pretty much hitting him. It woke him up. He definitely realized what was going on and why I was acting like I was. He grabbed my kit and tested my, took a couple of tries, but finally got it. He got readings of 40 mg/dl and thereabouts. He grabbed my glucose gel and tried to get me to take some but even though my eyes were open, no one was home. This didn’t work. He called my mom and she drove over. Keep in mind this is all in the wee hours of the morning. She got in my face and couldn’t get me to respond. That was it. He grabbed me, threw me over his shoulder, and brought me to the ER. We were literally minutes away and 911 would have taken forever and a day, plus he knew I would be pissed if I found out I was brought over in an ambulance for some reason.
At any rate, this day will not soon fade from my memory. And I am more grateful than words could ever express that he was home when I needed him. See, he works as an engineer offshore. So he is only home with me for half of our lives together. I don’t know what I would have done without him. I just know I would have been another case of the increasing cases of “Dead in Bed” that is coming up more and more. It’s just unthinkable how fortunate I am to have him. And I try to let him know that every chance I get. He has stuck with me for nearly 10 years now, and I can only pray that he keeps putting up with me and everything that is entailed of my complicated crap disease. I, also am greatfull to the ER doc and the nurses that finally were able to find a line to give me emergency medications via IV. “Did you know you have no veins?” No, really tell me more.

4th Annual Diabetes Blog Week – 5/1413 -Day 2

Today’s prompt: Recently various petitions have been circulating the Diabetes Online Community, so today letโ€™s pretend to write our own. Tell us who you would write the petition to โ€“ a person, an organization, even an object (animate or inanimate) – get creative!! What are you trying to change and what have you experienced that makes you want this change? (Thanks to Briley of inDpendence for this topic suggestion.)

I have to admit, I’m either completely out of creativeness or a completely bring person. I’ll be honest. There isn’t too much I would change at the moment. Even though my life with T1D is now approaching it’s 17th year anniversary, for most of it I was in complete denial and didn’t care. I took my shots, usually, but I never and I honestly mean never checked my blood sugars. Quite frankly, contemplating on the past, I am damn lucky to even be alive. I had an awakening. I was happy, really, in the past. I stayed decently thin. I never had to exercise, or for that matter watch what I ate. Nothing, and stayed thin. Didn’t give a damn that I was probably doing irreversible damage to my body. But for a good 10+ years I lived like this. How could I not. Positive reinforcement was abundant, even though it was coming from people who had no earthly idea that I was suffering from what they now call diabulemia. I had learned to live with always having something to drink nearby. Learned to deal with always bring tired. Learned to live and deal with it all. My awakening came when I was so deeply into a severe metabolic acidosis or severe DKA. I knew it, I just didn’t want to admit it. I went to work, because I never called in sick, like ever. One Friday afternoon after getting off from work, I could not breathe. My mother noticed it. She said lets go to the ER. No really I was fine. I couldn’t even walk to the car. I finally surrendered. I knew I was dead over the weekend if I didn’t do something. I went to the ER, was admitted to ICU and several days later, I was able to go home again. I finally at the ago of 30 and after 10-15 years of denial and ignoring what I didn’t want to acknowledge, it was over. I grew up. I took responsibility for me. I went to the doctor regularly. I got my regular labs. I was a “good diabetic” for the first time since high school. All went well. Until about six weeks ago. Wake up in the ER from a severe nocturnal hypoglycemic episode. CRAP. Well that’s what happens I guess. After I delved into the vast DOC that is here now, non-existent when I was first diagnosed, I took the stories and inspiration of a lot of those out there that I have come to admire for being, well like me, I decided on a CGM and now, after nearly 20 years, I am in the best condition I have been in in a long, long, (one more time) LONG time. And I am happy for once.

So to get back to the task at hand; my response would have to be “I have not yet been living a responsible diabetic” lifestyle long enough to make an informed response. I guess I should have started with that.

Until next time…

It’s Here!! MY Dexcom G4 (Pink, of course) is HERE!!!!

I was like a child waiting for Christmas morning waiting for the FedEx girl to bring my package to my office. (I had to sign for it and didn’t want to take a whole day off work just wait for it, but for the record, I totally would have). Anyways, I couldn’t concentrate for anything. It was sad really, but I had been waiting for what seems like such a long time and the last few hours were definitely the longest. But it finally showed up after lunch and then the next longest wait…the wait for the time to clock out. It finally came and straight home I went. Ate dinner, took a shower and got ready to get my first sensor inserted and get the show on the road. I got out the shower, got everything ready and got it done. I guess I was building it up so much in my head, but it went by pretty easily and surprisingly painless. Now that I think about it, I don’t know why I was expecting it to be a problem. I guess its the whole under-promise and over-deliver thing. Whatever it was, it’s all good. My only regret is that my honey was off at work and won’t be home for more than a week from now. So he didn’t get to see the process, but I’m pretty sure that he will be a pro at the whole thing in no time. It is just one more thing he has to deal since it is now a part of me. I shouldn’t say deal with, but I can’t think of a better way to put it at the moment.
Now I’m in the middle of the two hour start up and now it’s becoming a long two hours so I turned to catch this up and hopefully pass by a little time. Dang it, I do type fast. Blame it on the day job. People tell me all the time that I type fast, even if I am on the phone, the person on the other end will tell me how fast they can hear me typing. I take the compliment and just don’t really realize it until I stop and listen to my fingers on the keys. But, I digress. I’m having attention issues this evening. ๐Ÿ™‚ I am looking forward to being able to take a peek into my levels in between finger sticks. I can see it now: I am going to drain the battery the first day because I am going to constantly be checking the dexcom. But hopefully my OCD and Type A personality will get over the newness and the excitement and let the Dex just be another part of my life with diabetes. Only now, hopefully with a little more knowledge and insight on my glucose levels, more than the 5-8 snapshots I see throughout the day. Peace out peeps…Here’s to an awesome first overnight (ok first ever) trend graph. ๐Ÿ™‚

This might be too good to be true…my Pink Miracle

I saw my new endo last week. I went because I had that lovely trip to the ER on Easter Sunday morning with a hypo that I didn’t feel and slipped me into unconsciousness, or as they called it and “altered mental status”. Scared the crap out of me and I don’t ever ever want that to happen to me or my loved ones again. I asked about CGMs at my appointment and she was encouraging about them. After I was sent home with some pamphlets and reading materials, I made the choice, on my own, to go for it. It wouldn’t hurt to try it. I called the nurse back and asked what I needed to do to get the show on the road and get everything in motion. All that had to be done was she had to call the rep and have the rep call me and start the paperwork. OK…sounds easy enough. The next afternoon the rep called me and got what he needed from me. I just needed to fill out my insurance info and fax it to him with my cards. Easy enough. Since I was at work, I filled out what I needed to, copied what I needed to and away went the fax. Now they will call my insurance and do all of the leg work for me. This sounds promising. And I don’t want to get too hopeful because nothing has ever happened for me this easily. Especially medically speaking. I am hoping that I get a call with the all clear, and to find out what color G4 (WOO HOO!) that I want ordered and to plan the next step of getting started. By the way….PINK Baby!!!!! So hopefully in the next couple of days or next week I will find out where everything stands. I hope with every ounce that I am, that for once in my life, this will work out for me favorably. I want so much to get better control and right now this is my shot. I was in such denial for a lot of years and now that I want to get myself right and be in control, as much as I can be, I am hoping for my Pink Miracle. ๐Ÿ™‚ Until I find out more…all the best…Lainie

Well THAT Most Definitely Scared the Stuff Out of Me

I went to bed Saturday night, at a respectable blood sugar of 94. I wake up this morning and it takes me a minute to realize where I am. I most definitely was not at home in my bed. I was in the ER! Wait, what?? What the hell happened?? I didn’t remember ANYTHING. And that scared me more than anything. Apparently, my sugars crashed last night. (STILL trying to figure out what happened). So the story goes, I apparently dropped, and that didn’t wake me up. So I guess, I was starting to throw some punches and kicks and woke up my boyfriend. After he woke, he figured out what was going on, tested my sugar, and found me to be at 44. Verified that with another one, this time 40. Apparently I was completely out of it. And also not willing to cooperate. He tried to get me to take glucose gel, which even though it doesn’t taste bad anymore, I was still having none of it. My eyes were open, but I wasn’t there. He called my mom, who is about 5 minutes away, to come help. Keep in mind this is all about 430am-500am. After she got there, they discovered the emergency Glucagon was expired and that was it…in the car he plopped me and to the ER we went. I woke up very shortly thereafter and when I figured out after a minute where I was and what happened, I was scared. Not so much that I dropped. Not at all. It happens. But when it does, I KNOW that it happens. I feel it, I test, I treat and I’m good. Even if it is in the middle of the night, I somehow wake up on my own and am able to treat myself. I have NEVER had this happen to me, EVER. And that is what scared the crap out of me. I hadn’t had a CLUE of what happened, no recollection, nothing, nada, zip. The ONLY thing I could even possibly think of is that when I dropped, I was in that deep of a sleep, that I didn’t wake. But who knows. Maybe it was a fluke.
No new meds, same doses, same everything. I tested no less that I test on any given day. I didn’t do any more work than usual…Nothing…
After 16+ years of T1D, this is the first time this happened. I don’t guess that’s too bad. Hopefully it is the last.
I guess what bothers me the fact that I had to depend on someone else to take care of me, and today, to save my life. I’ve always been able to do this on my own if I had to. I’ve always had people there for me, but I did everything myself.
I am going to back Lantus down a couple units until I get to see my doc and level me out. I have been slightly lower than normal, but nothing to warrant this, at all.
I’ve been contemplating a CGM of some sort for a while now, and I think I am going to finally do it. This might have been the push I needed.
It just goes to show you, you can do everything right, follow every rule, and diabetes doesn’t always do the same for you. Just a little fairness is all I ask. But some days, like today, I think its just a little too much to ask.
And as silly as it might sound, I am actually scared to go to bed tonight.

Okie Dokie Then….

So yeah, its been more than a little while since I have made myself sit down and get a post out. It’s the cliche “there’s just not enough hours in the day”. And somehow, it’s true, there truly just aren’t most days. Yeah, I know there are a lot of fellow PWDs with blogs out there that I enjoy following and actually do so on a fairly regular basis. Believe you me, I know they are a lot busier than I am. I just find it amazingly hard to make myself stop and take time for ME to get my thoughts, emotions and everything else in my life with insulin dependent diabetes.
The holidays went by fairly well. My sugar’s behaved as well as I could expect. More normal results that abnormal ones.
I did get to have my honey home for both Christmas and New Year’s, which is the first time we have had both together in the 10+ Christmas holiday seasons that we have been together. That was a gift in itself, truly. But my actual present from him was just as good. He gave me a car. My FIRST car that was actually mine, all mine. Still, almost two months later, I still can’t believe it. No, it wasn’t a new car, it was his car that he gave to me when he bought a new car for himself (which I didn’t know about until I was given his as my gift). At any rate, it is new to me and I could care less that it’s used. At least I know who the owner was and how well it was taken care of, etc. etc. He teased me about it for weeks and apparently had been planning it for months. He would give me hints, all without telling a lie, and always keeping me in the dark. “It will all make sense when you get your present.” OK…I got “it’s something you truly truly want, but would never ever ask for”. Well all this was true when I finally opened a small wrapped box, that had been filled with a weight to really throw me off, and saw the car keys. I can honestly say that I was completely surprised and totally in shock and awe. Everything I was being given as hints finally did fall into place. So I spent Christmas shopping for insurance and looking into title, registration and all that other legal crud, then after that I made it mine. Legally and literally. I “girled it up” a little bit. I didn’t go over the top…at least not yet. A license plate cover, a touch here, a touch there and it is finally something I can say that is mine.
Not too long after Christmas, he went back off to, immediately after I get the flu and am down with that for several days, but was still not feeling back to normal for a couple weeks. By blood sugars sure knew I was sick, which I knew they would. I knew why they would jump and hover where I didn’t want them to be, but that didn’t make it any easier to accept. I am one that wants to keep my numbers as close to “normal” as I can be. So seeing my number climb even though I was doing everything correct, I never did anything I shouldn’t have, was extremely frustrating to say the least. Eventually I starting feeling better and numbers finally started to normalize. I finally was no longer ticked off at my body for being sick…and life goes on.
So about a month later and we are approaching the almighty commercial holiday that is Valentine’s. Something that honestly we never really celebrated, and I am totally fine with that. I made no plans other than to get him maybe a little box of candy for the day he came home from work (actually V-Day itself). When off to work he goes today and asks me when Valentine’s is…um ok….”it’s next Thursday, the day you come home”…”OK good, I already got your present.”… Seriously? We don’t do Valentine’s…I love buying gifts for people, but this isn’t one we normally do. So off I go this weekend to shop…don’t mind that either by the way ๐Ÿ™‚
O well…I think I’ve been all over the place tonight and had filled in the last couple months nicely. Hopefully I can plant myself down here in before another two months go by.

Another Day, MD appt,Hypotensive and Tachycardic..and haven’t STARTED Christmas shopping AHH!!

I am wide awake, should be in bed. 515am comes mighty quick after all. I am running on not a lot of sleep last night. Any my brain won’t give me a rest.

My blood sugars have been pretty good so I am satisfied with that. Monday was a normal day as normal can be for a T1 diabetic. Tuesday, I wake to realize my pulse is racing. I check it with my blood pressure monitor and is nearly 140. Freaked out to say the least.

I get ready and go to work as calmly and quietly as I could. At work, I can’t concentrate, paranoid because my pulse is still so high. All of my coworkers were trying to get me to go to the ER, but as stubborn as I am, I of course did not. I choose to go home and lay in bed. I relax all day, hard to do as I NEVER leave work like that. At any rate, I had called and made an appt. to be seen the next morning. I get by the night and go in for my appointment. The med assistant tells me my pulse is 76…no offinse, but I can take my pulse and it is nearly double, By the time the doc comes in, I tell her there is no way it is 76. I can feel my heart, and I can count by the way too. She says, no..you are sittng at about 124. Plus I have a fever and and FREEZING..I mean shivering cold. Not that I was happy I was right, but a heart rate is not rocket since to calculate. Any ways, I digress. After labs and a once over, it seems by blood pressure medication that I was put on (for protection of my kidneys, I do not have or have never had high blood pressure) was making my BP drop. I also knew this b/c I had been checking it when I was checking my pulse all day the day before. So my BP drops and my heart trys to compensate. Honestly, that is what I was figuring, but I rather hear it from the professional.
Labs came back mostly normal…no infection, etc. However labs turn up that I am anemic. Yay. At least I know why I am tired and forever cold (part of the reason anyway) Low BP will do it too. Seriously, people on my office will have desk fans on them, me I have a jacket or two on.
Well at least the reason why my heart was going nuts and the reason why I was cold has a reason, and a fix that we are tweaking with my meds. ** Who would have thought that I would be on more medications in my 30’s than my grandmother in her 80’s.**

Same night, my honey has to go back to work. So I always hate that. First I just hate when he leaves. Yeah, I am one of these odd women who wants to be with her man everyday. So he leaves for work, and in the middle of the night. I NEVER sleep the night he leaves, I guess I worry a lot, but I can’t stand him not being there by me in bed. So I didn’t sleep that night, then yesterday was just a crap day at work. No matter what you do, it’s not right or its not good enough or its just all around your fault. Needless to say by the time I got home, I was so physically and emotionally exhausted that I just broke down. I have to realize work is not my life and I have a life outside of that place. It can not make you feel like this. I just have to remind myself that, no matter how hard it is. Didn’t sleep well last night either, I guess because the whole work fiasco of that day. I let stuff bother me too much. And here I am tonight. Just plain can’t sleep so here I sit.

Now the last, yeah right, thing on my mind right now. Christmas has crept up like you wouldn’t believe, just as it does every year apparently. I don’t have a lot of people to buy for. Usually my mom, a few close family members and of course my boyfriend. I have a few ideas of what I can get for him. He is usually hard to buy for, and I always want to get him anything he wants. He’s the type that has everything he wants. He wants something, he can afford it and he gets it. Makes my job a little hard. Anyway, I will have to get all of that done by the time he gets back from work a little before Christmas. I can do it, I always do. Somehow.

So if my brain will slow, as well as my heart, I am going to attempt to sleep again. All i can do is try. That’s all I can ask of myself in any respect of all my aspects of life.
OK getting a tiny bit deep. I shall end this here. Here’s to a good day FRIDAY tomorrow, of good blood sugars, blood pressures and heart rates. I don’t think that asking too much! ๐Ÿ™‚